Experts warn that millions of young people could miss out on effective treatments because so few take part in medical research.
Data shows 18- to 24-year-olds make up 8% of England’s population but only 4.4% of medical trial participants, meaning new drugs and therapies are often developed without their input.
“Young people face unique health challenges shaped by social pressures and life transitions,” said Kirsty Blenkins of the Association for Young People’s Health. “If treatments are tested mainly on older adults, they may not be safe or effective for younger patients.”
The NIHR found only 32,879 young adults took part in 5,042 studies between 2021 and 2024. Barriers include lack of awareness, limited recruitment, and privacy concerns.
Dr Esther Mukuka from NIHR urged Gen Z to get involved: “Research shapes how we treat everyday conditions like asthma and mental health. Without their participation, future treatments won’t meet their needs.”
The NIHR is encouraging more volunteers through its UK-wide registry, which matches people to studies. “Even if you’re healthy,” Mukuka said, “taking part helps shape the NHS of tomorrow.”
